Last week i received an email from a reader of my blog. Asking me what i actually do apart from blogging.
She said she new i was a carer for my husband but did i sit around all day and blog and just go on the Internet etc...
So Maxie i shall answer your question here for all to see :~
being a full time carer is a lot of work. I do get times i just want to walk away and say "That's enough"
My day normally starts off early at 6am i make my coffee and do posts ,check email and other things.
Dion wakes at around 7 or 8am ish i make him coffee and take it to him. Sometimes he needs a good massage on his back,legs etc
I run him a bath with caster oil as it keeps things down like his nerve system and so on....
I help him dress we chat he can walk OK still but gets tired allot and he is always sore.
By lunchtime ~ Depends on what kind of day he's having if he can do small things otherwise i put him back to bed for a few more hours. Then i go and do errands or what ever i need to do for those few hours.
Some days are harder than others but lately it's pretty good . But he does have times he is pretty bad and just can not move at all. I interviewed him a while back you can read it HERE and HERE and HERE
Yes i get a carers pension but it's not much and i work hard for the pittance i do get paid but that's life i guess!
I make all his appointments to the psychologist,Doctors etc... Sometimes it's hard to talk to him as he is on a different level to me .He has high function autism. He gets very frustrated if you don't pay attention etc...
So Maxie its not all fun and games being a carer at all . I know other carers would agree with me.
I am very happy last night i joined a wonderful group for carers (just my space) maybe chat about the day i had or be able to rant etc.... if i can't chat to Dion and need a friend's advice some one who can really understand where i am coming from.
ARE YOU A CARER FOR SOMEONE ?
HOW ARE YOU COPING WITH IT ALL ?
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